Things have been so busy this week - I say that and then I prepare to write about what's been going on at our house and I can't seem to come up with much from the last week. I guess life just always seems so busy with four little ones! Sometimes I think that God has an amazing way of making me forget. I know that sounds odd - but, really if I could remember every little thing that filled my busy week last week I would probably wake up every Monday morning completely dreading the week ahead of me. So, even though I thought I'd never say this, thank you Lord for making me forget!
We did find out at the beginning of the week last week that Tucker's ciliary biopsy is scheduled for this coming Thursday, September 1st. I am feeling a little discouraged about every thing right now and am hoping that things will go much better than I am preparing myself for. They have decided to go the less invasive route - which seems like a good idea, right? Ugh. I was told we would be putting him to sleep and doing a biopsy of his lung. Apparently, instead we are doing only a ciliary biopsy which can be done from his nose. Still wondering what the problem is? First off I'm a little nervous because he is starting to seem to remember some of the tests that he is going through. He has become very clingy and has stranger anxiety like you couldn't believe. For the biopsy in his nose they do not give him any type of sedatives. They strap him to a table and hold his head still while they perform the biopsy in his left nostril and then again in his right nostril. He will also have to be held down to give a fairly large amount of blood. My second reason is because this test will only test for PCD (primary ciliary dyskinesia) - if we were doing the lung biopsy they could use the tissue to test for several different things. So, if it turns out that he doesn't have PCD - we will more than likely end up doing the lung biopsy anyways. Very. Frustrating. Scotty and I will also be giving blood because we are going through UNC's research team and if he does end up having PCD they will use our blood (because PCD is genetic) to help figure out exactly which gene combination it is that is causing PCD. As if all of this isn't overwhelming and frustrating enough - want to know when we will get the results from this test back? Hopefully, we will have them by Christmas. Yep. No need to re-read it. You read it right. Christmas! Jesus' Birthday! December, 25, 2011. Four months away! Are. You. Kidding. Me? That's all I could come up with to say after the sweet nurse told me that. How rude, huh? I didn't mean to sound rude - it just completely surprised me.
On a lighter note Madi and I got new hair cuts this week and, Whoa...Bob! Between the two of us we cut off 15 inches of hair!!! I like Madi's hair long, but, I have to say that I forgot how stinkin' cute she looks with a cute little bob! Not to mention it is so much easier to wash, dry and style! As for me, it is definitely going to take some getting use to, but, I think I'm going to like it. The first day that I had to style it on my own I was a little nervous because I didn't feel like I was going to be able to get it cute like the hair dresser could. Doesn't it seem like that is always the case? I did better today though - so, hopefully it will be okay!
This week I am determined to buckle down and get a few last closets and cabinets worked on and get prepared for company this weekend! I'll let you know how that goes when the time gets closer... Be strong and courageous. Do not fear or be in dread of them, for it is the LORD your God who goes with you. He will not leave you or forsake you. - Deuteronomy 31:6
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